Oliver is doing great! Thriving in every possible way. Doing great in his little glasses, he’s very social, smart, active, remembers every tiny thing. And soon to be 4, which is hard to believe…
Emmett is also doing great! Just turned 1, well, January 6th. Oddly, that same week, his left eye started shaking, so at his 1yr well visit we brought it up. Since then, we’ve seen an ophthalmologist, a neurologist, a neurosurgeon, and he had an MRI. The diagnosis is nystagmus, and he’s nearsighted with quite an astigmatism. Our next stop is a geneticist. But, we know it’s genetic. The eye thing that is. These difficult visual issues run pretty deep in my family. He has glasses now, and we’re all learning.
The MRI, while checking for neurological reasons the nystagmus just started, as it most often is present much earlier than 1 year, showed that he has a moderate Chiari Malformation. Which, in a worst case, will mean a surgery, but in the meantime is something we’ll just watch. The fact that it is moderate means a yearly MRI.
Both nystagmus and Chiari Malformation- are things I’d never heard of before. But, here I am, learning every day.
Emmett truly is handling all of these things like a little champ! His glasses have shown me just how visually impaired he is. Since getting them, he now plays with things he never paid attention to, moves faster, and stares at our faces, which tells me he wasn’t seeing us very clearly before. Which, could break my heart, but I’m just so happy these are things we can manage! In the midst of all this, he had tubes put in his ears.
So, that’s what we’ve been up to since the hysterectomy – the holidays, birthdays, and possible health crisis. Currently, everyone is down with a stomach bug, even my parents, who had Oliver over the weekend.
I am ready for summer!